SUPPORT GROUPS, ORGANIZATIONS,
RESEARCH CENTERS, AND RESOURCES IN SPINAL CORD INJURY
ORGANIZATIONS AND RESEARCH CENTERS
of Spinal Cord Injury Nurses
"...dedicated to promoting quality care for individuals
with Spinal Cord Impairment (SCI) ... by advancing nursing practice
through education, research, advocacy, health care policy, and collaboration
with consumers and health care delivery systems." Includes bulletin
board and political update.
Association of Spinal Cord Injury Psychologists and Social Workers
"...provide for the emotional, behavioral and psychosocial
care of those affected by Spinal Cord Impairment (SCI)", and support
education and research related to the psychosocial care of persons with
"...dedicated to improving the quality of medical care
delivered to persons with Spinal Cord Impairment." Promotes research
and the review of scientific findings.
Spine Injury Association
Mission is to promote excellence in health care,
education, and research of both acute and chronic SCI, among physicians
and other medical professionals.
"Our mission is to assist persons with spinal cord
injuries and other physical disabilities to achieve independence, self-reliance
and full community participation."
Canadian and American
Spinal Research Organization
"...dedicated to the improvement of the physical
quality of life for persons with a spinal cord injury...through targeted
medical & scientific research." Includes Quarterly Magazine,
Program Report, and Links to other sites.
Center for Applied Special
A nonprofit organization that uses computer technology
to expand opportunities for people with disabilities
for Paralysis Research
Located at Purdue University, the Center for Paralysis
Research was founded to develop and test promising methods of treatment
for spinal cord injuries in close affiliation with the School of Veterinary
for Universal Design (CUD)
Located at North Carolina State University, the
Center for Universal Design collects, updates, publishes, and distributes
information and provides technical assistance on housing, home modifications
for accessibility, and product evaluations for people with disabilities.
Christopher and Dana Reeve
"A merger of the American Paralysis Association
and the Christopher Reeve Foundation... encourages and supports research
to develop effective treatments and a cure for paralysis caused by spinal
cord injury and other central nervous system disorders." Web site
has News, Publications, Events and other sections.
Cleveland FES (Functional
Electrical Stimulation) Center
In addition to information on the Center's projects,
publications, education programs, and employment and training opportunities,
this site includes the FES Information Center which has a newsletter,
subject bibliographies, and other online resources.
"This site is dedicated to all who are involved
with or affected by spinal cord injury, especially researchers and clinicians
in multi-disciplinary fields of study that may relate to the advancement
of the healing, or cure of spinal cord paralysis." Includes information
on clinical trials and prospective cures in the SCI
Research Link, spinal cord injuries, news, related links, and
a Chat Forum, where you and researchers and clinicians can talk
and exchange ideas and information.
Disabled Sports USA
The site includes a schedule of events and information
on adapted fitness workshops and seminars; internship openings at DS/USA;
links to DS/USA Chapter Web sites; access by program/activity, major
events, and equipment of DS/USA chapters and regions; and links to other
Web sites related to disabilities, including other disabled sports and
Foundation for Spinal
Cord Injury Prevention, Care & Cure
FSCIPCC is a non-profit educational group dedicated
to the prevention, care and cure of spinal cord injuries through public
awareness, education, and funding research.
Spinal Cord Society
Objectives include the study of SCI, a scientific exchange
among members, and support of research, patient care, and education
of health professionals involved in SCI. Site includes other international
Located at West Virginia University, JAN is "not
a job placement service, but an international (U.S. and Canada) toll-free
consulting service that provides information about job accommodations
and the employability of people with disabilities in both English and
French. JAN also provides information regarding the American Disabilities
Act (ADA)." The site includes free access to online employment and disability
Miami Project To Cure Paralysis
"An international center for spinal cord injury
research, University of Miami School of Medicine." Includes information
on Marc A. Buoniconti, on the research, newsletter, timeline of achievements,
calendar of events, and other information from the Miami Project, as
well as links to related sites.
Systems Knowledge Translation Center (MSKTC)
Summarizes research, identifies health information needs and develops systems for sharing information for the National Institute on Disability and Rehabilitation
Research (NIDRR) model systems programs in traumatic brain injury, spinal cord injury and burn injury.
Cord Injury Association
"The mission of the National Spinal Cord Injury
Association is to enable people with SCI to make choices and take actions
to achieve their highest level of independence and personal fulfillment."
Web site includes information about NSCIA, the current week's articles
in Disabilities in the News, a "Books on Disability" section, and "The
Resource Center", which "features information specifically for people
with new injuries."
Paralinks; the Electronic
Magazine for People with Spinal Cord Injury.
Paralinks is a "collection of wheelchair users dedicated
to providing every conceivable bit and byte of information available
to those of us living with SCI in order to improve our lives in every
way, no less!"
Paralyzed Veterans of
PVA "was formed following World War II to serve
veterans with spinal cord injury or disease. This site is a resource
center for all such veterans and for all American with a spinal cord
injury or disease, as well as their families and the professional communities
who serve them."
This site includes the Spinal
Cord Injury Resource Center -- with information on SCI, managed
care, new treatment guidelines for SCI and SCI-related conditions, such
as autonomic dysreflexia.
and Assistive Technology Society of North America (RESNA)
"RESNA is an interdisciplinary association
for the advancement of rehabilitation and assistive technologies (AT)".
Comprehensive Web site includes AT act of 1998, professional development
resources, SIG-10 to identify, develop, implement, and text electrical
stimulation methods, and RESNA documents and certified AT practitioners
Rehabilitation Research Center for TBI & SCI
The RRC conducts research to better understand and improve outcomes after TBI and SCI. "This website contains information on the activities of the RRC as well as a large collection of easily accessible online resources, including resource guides, educational materials, newsletters, and bulletin boards."
"Provides mainstream and complimentary therapeutic
services that develop independent living skills for individuals who
have experienced spinal cord injury and related nervous system disorders
The magic of Shake-A-Leg lies in peer-to-peer challenge. Participants
with varying years of experience with their disability provide each
other with a rare wealth of information" in the Body Awareness Therapy
Site is designed for those who suffer directly or indirectly from spinal
cord injuries or diseases of the spine. Contains helpful information
such as books, pamphlets, and publication resources; links to online
disability communities; a listing, by state, of hospitals and rehabilitation
facilities; a research section on treatments and cures; and information
on wheelchair set up (manual and power). Additionally, the site has
a health issues section that provides information on bladder and bowel
management, skin management and much more.
Injury Network International (SCINI)
developed in 1986 to meet the needs experienced
by spinal cord injured individuals and their families [by] responding
to these needs with information and referral services." These services
include: 1-800-548-CORD telephone information and referral; a free video
lending library on accessibility, wheelchair use, education/training,
employment, sports, etc.; and a library of books, journals, clippings,
brochures, and catalogs on SCI-related topics available for a modest
Cord Society (SCS)
"An international organization for cure, research,
& treatment of spinal cord paralysis & related problems" developed
in 1978. Site includes headlines from the SCS newsletter on cure research,
current SCS research projects, and other information on SCS.
Spinal Injuries Association
"The national organization for people paralyzed by spinal
cord injury." Site includes useful information on services in England.
Think First, the National Brain and Spinal Cord Injury
Prevention Program (formerly titled the National head and Spinal Cord
Injury Prevention Program) is a public education effort targeting
this high-risk group about personal vulnerability and risk taking.
Previously called the National Wheelchair Athletic
Association, this site includes information on upcoming events, news,
and a directory of regional sports organizations.
PoinTIS Copyright © 2009 the Louis
Calder Memorial Library of the University of Miami/Jackson Memorial
Medical Center, all rights reserved.