NEUROLOGICAL, COGNITIVE AND BEHAVIORAL PROBLEMS IN TBI: REACTION OF FAMILIES AND FRIENDS

Emotions

     If you have a family member or friend who is a victim of TBI, it is normal for you to experience made emotional reactions, such as:

Panic and Fear - at least until the patient becomes stable medically.

Shock and Denial - feelings that what has happened is not real or that serious.

Anger - directed at the patient for allowing the injury to occur and/or at the rehabilitation team for doing and saying things you may not feel are right.

Guilt - feelings that you could have done something to prevent the injury, which may or may not be true.

Isolation - trouble relating to people who are not as involved in the injury as you are and who you feel will not understand.

Hope and Anxiety - as the patient begins to stablilize, you may feel a combination of anxiety about his/her progress and hope at the same time.

Coping

     To help you cope with the stressful situation:

  • Express your feelings - both positive and negative ones - with family members, friends, and the rehabilitation staff
  • Take time for yourself, away from the patient - take a walk, dine with a friend, and go home or away from the hospital to eat and sleep
  • Accept the offers of assistance you receive
  • Keep a journal or log of important information and organize records and information for easy access
  • Rotate visits with family and friends, so the patient is not alone and you have some time to yourself

Based on Brain Injury Patient Care and Education Manual, by Pinecrest Rehabilitation Hospital; Neuro section of the Trauma Manual, Jackson Memorial Hospital; and Recovering from Head Injury; a Guide for Patients, by Nova University Neuropsychology Service, and edited for PoinTIS by the Louis Calder Memorial Library of the University of Miami School of Medicine and the PoinTIS Advisory Committee, and on Rehabilitation of Persons with Traumatic Brain Injury, NIH Consensus Statement 1998 Oct. 26-28.