SUPPORT GROUPS, ORGANIZATIONS, RESEARCH CENTERS, AND RESOURCES IN TRAUMATIC BRAIN INJURY: DIRECTORIES, GUIDES, AND DATABASES

ABLEDATA
     A national database of information on more than 23,000 assistive technology products and rehabilitation equipment.

Brain Injury Information Links
     A good list of brain injury Web sites organized by categories, such as rehabilitation and survivor and family networking.

Brain Injury Information Network
     A comprehensive list of links to both traumatic and acquired brain injury resources, including support groups, mailing lists, on-line chat rooms, epilepsy/seizure information, professionals, organizations, survivor pages, and education, statistical, legal, commercial, case management, and drug information.

eMedicine - Traumatic Brain Injury
     A series of full text articles on management/staging, autonomic and endocrine complications, HO, hydrocephalus, and epidemiology/pathophysiology in TBI.

Injury-Related Websites
     A comprehensive list of links to the web sites of injury-related organizations, resources, and databases from the National Center for Injury Prevention and Control. Includes, but is not limited to, resources on TBI.

MEDLINEplus: Head and Brain Injuries -
     Resources for patients compiled by the National Library of Medicine

National Resource Center for Traumatic Brain Injury
     Located at Virginia Commonwealth University, this site includes TBI education and training resources; brain injury associations, support, survivor, and family links; publications; rehabilitation and disability resources; and cognitive rehabilitation and assistive technology resources.

National Rehabilitation Information Center (NARIC)
     NARIC , a component of the National Institute on Disability and Rehabilitation Research (NIDRR), has, for more than 20 years, maintained databases with the latest in disability information resources. REHABDATA summaries more than 51,000 documents on rehabilitation and disability research. NIDRR Program Directory has descriptions of more than 300 current research projects funded by NIDRR. NIDRR Compendium has summaries for more than 2,000 documents, fact sheets, videos, brochures, and other products of NIDRR projects. NARIC Knowledgebase has listing for 700 "content deep" Internet sites and 1,200 organizations. The NARIC Guide to Disability and Rehabilitation Periodicals lists more than 300 journals and newsletter that focus on rehabilitation, disability, and assistive technology.

New Mobility Bookstore
     Includes Message Board and Chat Room.

New Zealand Guideline Group
     Traumatic Brain Injury Rehabilitation Guidelines, a comprehensive document developed to "help service providers improve rehabilitation services and results."  The guidelines aim to raise awareness of the need for rehabilitation services for people with TBI, describe essential features of a TBI rehabilitation service, provide a basis for improving service, and identify areas where research is needed on TBI rehabilitation in New Zealand."

REHABDATA
     The leading literature database on disability and rehabilitation, maintained by the National Rehabilitation Information Center. Describes more than 65,000 documents, published since 1992, on physical, mental, and psychiatric disabilities, independent living, vocational rehabilitation, special education, assistive technology, law, employment, and other issues

Rehabilitation for Traumatic Brain Injury
     A review of published reports and compilation of an evidence report by the Oregon Health Sciences University under contract from the Agency for Health Care Policy and Research (AHCPR) , published as Evidence Report Technology Assessment: Number 2.

TBI Help Desk for Caregivers
     An array of resources for caregivers of persons with TBI.

TBI Matters
     Available resources and events on brain injury by a DOE grant

Traumatic Brain Injury Resource Guide
     A comprehensive resource guide and search engine to full text information and to services and products for TBI from the Centre for Neuro Skills (CNS). Examples of resources include article research of 7,600 articles on TBI and information on brain functions, including a brain map; assessment and treatment protocols for mild head injury; brain injury rating scales, drugs used in TBI, and a glossary of TBI terms.

Traumatic Brain Injury Survival Guide
     Written by Dr. Glen Johnson, this online book explains head injury to patients and their families and addresses issues such as coping with common TBI problems, emotional stages of recovery, and returning to school.

Based on Brain Injury Patient Care and Education Manual, by Pinecrest Rehabilitation Hospital; Neuro section of the Trauma Manual, Jackson Memorial Hospital; and Recovering from Head Injury; a Guide for Patients, by Nova University Neuropsychology Service, and edited for PoinTIS by the Louis Calder Memorial Library of the University of Miami School of Medicine and the PoinTIS Advisory Committee, and on Rehabilitation of Persons with Traumatic Brain Injury, NIH Consensus Statement 1998 Oct. 26-28.